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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by liking and/or sharing this video. This 2017 TED talk features Jennifer Brea
#MEcfs #MyalgicEncephalomyelitis @mecfs
Day #1
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What happens when you have a disease doctors can't diagnose | Jennifer Brea
Five years ago, TED Fellow Jen Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illne...YouTube
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Violet
Als Antwort auf Irish ME/CFS Association • •MECFS group hat dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •2/
May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.
youtube.com/watch?v=TGIo1v7KVJ…
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This film will give you an introduction to PEM (Post Exertional Malaise).
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Day 2 #MEcfs #CFS
@mecfs
ME and PEM
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •3/
May is #MyalgicEncephalomyelitis (ME) Awareness Month
You can help by liking +/or sharing this video
(9 minutes)This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/CFS"
vimeo.com/338532785
Day 3
#mecfs #PwME
@mecfs
This is ME (2020)
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MECFS group, ImmedicableME, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •4/
(2 minutes)
"What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)?" By @brokenbattery
youtube.com/watch?v=X6f4zCe2Zt…
You can help by liking and/or reposting this short video
#MEcfs #CFS
Day 4
@mecfs
What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •5/
May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
youtu.be/bXAdsrk0FZw
#MEcfs #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Day 5
What is ME/CFS? (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
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MECFS group, Tom Kindlon, Brian Hawthorne und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •6/
May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help by reposting +/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague) (3 mins 5 secs)
https://youtu.be/y69PqwZoUws
Day 6 #MEcfs #CFS
@mecfs
The Blue Ribbon: Sneak Peek
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •7/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video. It's been approved for continuing medical education in the US
youtu.be/RC9TjgE_PlU?si=wQzPnb…
Day 7 #MyalgicE #ChronicFatigueSyndrome
@mecfs
Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
alicedrawing4fun
Als Antwort auf Irish ME/CFS Association • • •teilten dies erneut
MECFS group und Irish ME/CFS Association haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.
It was made by a woman, Laurel, with severe ME Living with Severe ME (5 minutes 13 seconds)
youtu.be/LvweCk44WHs
Day 8
#SevereME #SevereCFS #mecfs
@mecfs
Living with Severe ME: Laurel's CFSAC Testimony (2009)
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •9/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this documentary, "Mom Needs to Lie Down".
It's a short Canadian film made in 2014. (11 minutes 25 seconds)
youtube.com/watch?v=EvrU-ciEFc…
Day 9
#MyalgicE #MyalgicEncephalomyelitis
@mecfs #mecfs
Mom Needs To Lie Down: The years and lives slept away by ME/CFS
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •10/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]
cctv.org/watch-tv/programs/inv…
Day 10
#MEcfs #PwME
@mecfs
teilten dies erneut
MECFS group, Tom Kindlon, ImmedicableME und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others
youtube.com/watch?v=9_HwOUiImv…
#Day11
#PwME #SevereME #SevereMECFS
#mecfs #VerySevereME
@mecfs
Invisible Illness - Stories of Chronic Fatigue Syndrome
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MECFS group, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this
(well-made) video.
(3 minutes)
youtube.com/watch?v=IOflARSgNn…
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay
@mecfs
C.F.S/M.E - The Torturous Disease
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MECFS group, Juchti, Tom Kindlon und Hugs4friends ♾🇺🇦 🇵🇸😷 haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •13/
This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
youtube.com/watch?v=THlRW_YGZm…
Day 13
@mecfs #mecfs
PEM - post exertional malaise
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MECFS group, Hugs4friends ♾🇺🇦 🇵🇸😷, Tom Kindlon und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or liking this video
youtube.com/watch?v=1kEBGfQ1Dh…
Day 14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs
@mecfs
How does it feel to live with ME/CFS? Patients describe what it's like
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MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •15/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery
youtube.com/watch?v=VKPdgz612n…
Day 15
#MEcfs #PwME
@mecfs
What is ME/CFS? (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTubeteilten dies erneut
MECFS group, Tom Kindlon, Brian Hawthorne und Bill Tschumy haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •16/
May is #MEcfs awareness month.
Please help by sharing +/or liking this Golden Girls episode on #CFS
youtu.be/vVyLZTKDy2E
#Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
The Golden Girls: Dorothy’s Struggle With CFS/ME – Awareness Video
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MECFS group, ImmedicableME und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •17/
May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month.
Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS youtube.com/watch?v=dUrPFqGONM…
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE #PwME #MyE #MEeps
@mecfs
An Existence Project | Paper Stop-motion Animation About ME/CFS
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MECFS group, Tom Kindlon, ThiefOfTime und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •18/
May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help to raise awareness and understanding by retweeting and/or liking this 7 minute 8 second-video made on a young UK woman with severe ME
youtube.com/watch?v=cPH3kKkEYA…
Day 18
#SevereME #SevereCFS #mecfs #severemecfs @severeme
@mecfs
Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1
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MECFS group, Tom Kindlon, Aileen22 und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •19/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month
You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue Syndrome (CFS) to other people" (2 minutes)
youtu.be/G4Rijt8jtZg
Day 19
#MEcfs #CFS
@mecfs
Comic: But........ you did it before by Mahli Quinn
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MECFS group, Tom Kindlon und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •20/
May is M.E. Awareness Month.
You can help by sharing and/or liking this video, a 1993 documentary, Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom Hennessy.
youtube.com/watch?v=SyB49g_l9S…
Day 20
#MyalgicE
#MyalgicEncephalomyelitis #PwME #MEcfs
@mecfs
Tom Hennessy on MacNeil Lehrer, Living Hell, Larry King - 1992
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MECFS group, A Temporary Collection und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •21/
May is ME/CFS Awareness Month.
You can help raise awareness and understanding by sharing and/or liking this 30-second video from the US Disease Control and Prevention (CDC)
youtu.be/bCUvygbYdXs
Day 21 #MEcfs #CFS
@mecfs
CFS/ME CDC "Missing My Life"
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MECFS group, Tom Kindlon und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •22/
Day 22
Educate others about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by sharing and/or liking this 3-minute video by @MEAssociation
youtube.com/watch?v=PKfdFzvrzR…
#MEcfs #PwME
@mecfs
If Only
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MECFS group, Hugs4friends ♾🇺🇦 🇵🇸😷, Tom Kindlon und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •23/
Educate others about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by sharing and/or liking this 9-minute video
youtu.be/r0w9-eQ_fKQ
Day 23
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE
@mecfs
M.E. / Chronic Fatigue Syndrome - Sleepydust Video
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MECFS group, Tom Kindlon und ImmedicableME haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •24/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this video, "Reduced Function". Association trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees* in this, at some points, very moving 20-minute video describing how ME/CFS has led to reduced functioning. However we would encourage people to watch the whole video, if possible, as different people describe different losses & impairments dialogues-mecfs.co.uk/films/pa…
@mecfs #mecfs
Patients' Accounts - Symptoms - Dialogues
Dialoguesteilten dies erneut
MECFS group, ahimsa, ImmedicableME und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •25/
Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video youtu.be/ZgAa-l-N1Eg
#MyalgicE #MyalgicEncephalomyelitis Day 25
@mecfs #mecfs
This is ME - Myalgic Encephalomyelitis
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MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •26/
3-minute Action For M.E. #ME video. Uses survey data to list symptoms & for examples of effects on life youtu.be/3aBfoGeUXUg Day 26
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Do You Care About M.E.?
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MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •27/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. my mum) Discusses various distressing topics dialogues-mecfs.co.uk/films/se… Day 27
#mecfs
@mecfs
teilten dies erneut
MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •28/
May is ME Awareness month
You can help by sharing and/or liking this video. Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E. symptoms http://youtube.com/watch?v=py-DWLyhJ2… Day 28
@mecfs #mecfs #cfs #pwme
M.E. and Me
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MECFS group, Hugs4friends ♾🇺🇦 🇵🇸😷, Sofasophia und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •29/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video
Fixer Ashleigh and Jodie Cleary discuss their experiences of M.E. (3 minutes 38 seconds). Also includes Jane Colby of the @tymestrust. ITV News Anglia (local UK news programme) youtube.com/watch?v=ooQD0udeyd… Day 29
#mecfs
@mecfs
Fixers ME and Me Story on ITV News Anglia, October 2013
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MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •30/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
Daughter tries to raise awareness and understanding of M.E., which her mother suffers from, with a film she made, "Sleeping Beauty". Piece from a UK local TV station itv.com/news/meridian/update/2… Day 30 1/n
#MEcfs #PwME
@mecfs
teilten dies erneut
MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •30 part b/
Here's the full video, "Sleeping Beauty", that a daughter of a woman with ME made to increase awareness and understanding of the illness (4 minutes 32 seconds)
youtube.com/watch?v=RFsjijSnef…
Day 30 #PwME #MEcfs
@mecfs
Sleeping Beauty
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MECFS group und Tom Kindlon haben dies geteilt.
Irish ME/CFS Association
Als Antwort auf Irish ME/CFS Association • • •31/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Month. You can help by sharing and/or liking this video. "Unbroken" (and "Seabiscuit") author, Laura Hillenbrand opens up about her own personal struggle with ME/CFS youtu.be/Mkl-tNe7wvM Day31
#MEcfs #CFS #PwME
@mecfs
"Unbroken" author opens up about her own personal struggle
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MECFS group, Hugs4friends ♾🇺🇦 🇵🇸😷 und Tom Kindlon haben dies geteilt.